Feeding tube!

Wow what a whirlwind week this has been so far and it is not even over. Sorry for not updating sooner but we have been rather busy and have not alway had access to a computer.

Last week Alexandrea pretty much was refusing to eat, She would normally take 5 oz bottles , but would only drink 2-3 oz, we waited a couple of days just in case she did not feel well, 2 days later, still refusing. We called the pediatrician, who had us bring her in, after some discussion, he placed a call to a pediatric gastro Dr in Portland, who wanted to see her as soon as posssible. We drove to Portland on Sunday, this is not a easy task with a hubby who cannot drive since he is legally blind, a 10 year old who says i'm bored (even with a game boy) and them asking "are we there yet" and of course Alexandrea and having to stop to feed her and figure out a way to pump in private.

The drive was a long drive, lots of traffic, when we got to eugene there was a accident in the southboud lanes, but it driver's gaulk, and slow down, finally got out of that mess only to hit standing traffic at read albany, it took 30 min just to go about 5 miles, finally got going again, for us to see a sign that read "accident ahead 20 miles, mile post 282 expect delays" , so again standing traffic on I5, We were so glad to finally reach the Ronald Mcdonald house where we would be staying.

On to our sweet baby girl Alexandrea, They really do not have clue to why she is not gaining weight like she should, they went ahead and put in a tube for her feedings, since she was not eating well, they adjusted her formula in her breast milk she get to 30 cal (normal breast milk is 20 cal per oz) We have seen numerous specialist including a gastro, neurologist, genetisist, nutrtioninst, speech therapist, cardiologist, family practice to have her evaluated too see if there is anything they feel might be going on, she has had numerous tests,of the test she has had done, all have been normal so far, they do one blood test that she has aomething higher in a certain thin in her white blood count but said that this could be due to a virus , but will have to keep this monitored (she has had a slightly snotty runny nose).

It is so hard to see her go through this and even more frustrating when they have control and she is tube fed and does not gain weight,

So we are hoping for weight gain tomarrow
more to come later