trains

We went to our Railroad Park today and rode the mini trains. We had a great time and this brought back many memories from when I was a kid going to his place and now I get to take my little one and Chris. So much fun.

Artwork and Skunks

Alexandrea's Great Aunt Lillian works a alot with pottery and tile, helped create this with her assitant.

We went to the fair and look what he did

yes your eyes are Correct, hes's holding a skunk

and then ......

Weigh In!

hello

Today we went in to the pedi for a weight check Little Miss Alexandrea weighed in at 10 lbs 12.9 oz. She is doing well so far on the night feedings and gaining a little more rapidly. So far she has managed to pull out her tube though everyday, So we have had to put in in on a daily basis. this is not a fun procedure for mom, daddy or Lexi. I am just thank ul that so far she is drinking enough by bottle that we have not had to worry about tube feeding anything during the day with bolus feeds. Our Pedi Dr C was pleased with her gain so far and hopes we continue on this path. We will meet with him again in a few weeks and again re-evaluate.

A wordless post!

Feeding tube!

Wow what a whirlwind week this has been so far and it is not even over. Sorry for not updating sooner but we have been rather busy and have not alway had access to a computer.

Last week Alexandrea pretty much was refusing to eat, She would normally take 5 oz bottles , but would only drink 2-3 oz, we waited a couple of days just in case she did not feel well, 2 days later, still refusing. We called the pediatrician, who had us bring her in, after some discussion, he placed a call to a pediatric gastro Dr in Portland, who wanted to see her as soon as posssible. We drove to Portland on Sunday, this is not a easy task with a hubby who cannot drive since he is legally blind, a 10 year old who says i'm bored (even with a game boy) and them asking "are we there yet" and of course Alexandrea and having to stop to feed her and figure out a way to pump in private.

The drive was a long drive, lots of traffic, when we got to eugene there was a accident in the southboud lanes, but it driver's gaulk, and slow down, finally got out of that mess only to hit standing traffic at read albany, it took 30 min just to go about 5 miles, finally got going again, for us to see a sign that read "accident ahead 20 miles, mile post 282 expect delays" , so again standing traffic on I5, We were so glad to finally reach the Ronald Mcdonald house where we would be staying.

On to our sweet baby girl Alexandrea, They really do not have clue to why she is not gaining weight like she should, they went ahead and put in a tube for her feedings, since she was not eating well, they adjusted her formula in her breast milk she get to 30 cal (normal breast milk is 20 cal per oz) We have seen numerous specialist including a gastro, neurologist, genetisist, nutrtioninst, speech therapist, cardiologist, family practice to have her evaluated too see if there is anything they feel might be going on, she has had numerous tests,of the test she has had done, all have been normal so far, they do one blood test that she has aomething higher in a certain thin in her white blood count but said that this could be due to a virus , but will have to keep this monitored (she has had a slightly snotty runny nose).

It is so hard to see her go through this and even more frustrating when they have control and she is tube fed and does not gain weight,

So we are hoping for weight gain tomarrow
more to come later

Sweetness

I was looking through some pics, i just love this big smile, ahh it just melts the heart.

here is another sweet pic


rolling over and giving big smiles!!

playing with toys

30 seconds later, sound asleep!!

Vocals

Alexandrea has become very vocal, and even more so since her big bro has been here. She is becoming quite the drama queen and want full attn on her. I have had a hard time capturing on films, as soon as you bring out the camera, she becomes miss serious.

Yesturday morning, she must of had a good dream as she was laughing in her sleep, it was way too cute, but the time I got the camera she was done


here is a video of miss squeally

Big Brother and 4th of July

Alexandrea was not too sure about the life jacket, and not crazy about the pool either








Hello All What a week

we have been pretty busy
Alexandrea has finally been able to meet her big brother Chris. He is visting us from Oklahoma. HS is not too sure what to think about him yet, She give him big smiles but does cry more when she is held by him, but she also I think is having a little stranger anxiety and wants mom or dad to hod her.

For the 4th of July we took Chris to the Redding Water Slides, where he had a blast but boy was it hot, When we left, the car said it was 109 outside, Def toasty.

Hope everyone has A great Week